Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support

BACKGROUND: Patients with rare diseases such as congenital hypogonadotropic hypogonadism (CHH) are dispersed, often challenged to find specialized care and face other health disparities. The internet has the potential to reach a wide audience of rare disease patients and can help connect patients an...

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Bibliografiske detaljer
Main Authors: Dwyer, Andrew A, Quinton, Richard, Morin, Diane, Pitteloud, Nelly
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2014
Fag:
Research
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC4059885/
https://ncbi.nlm.nih.gov/pubmed/24915927
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-9-83
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