The Italian National Rare Diseases Registry

INTRODUCTION: Rare disease registries are a priority at European level and specific actions are being implemented by the European Commission to support their development. In Italy, a National Registry of rare diseases has been established in 2001 as a network of regional registries. The latter have...

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Hlavní autoři: Taruscio, Domenica, Kodra, Yllka, Ferrari, Gianluca, Vittozzi, Luciano
Médium: Artigo
Jazyk:Inglês
Vydáno: Edizioni SIMTI - SIMTI Servizi Srl 2014
Témata:
Regional, National and European actions in the field of Rare Diseases
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC4044798/
https://ncbi.nlm.nih.gov/pubmed/24922301
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2450/2014.0064-14s
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