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Parents’ experiences of receiving their child’s genetic diagnosis: A qualitative study to inform clinical genetics practice
PURPOSE: Little is currently known about how parents experience the medical genetics appointment at which their child receives a genetic diagnosis. METHODS: We conducted semi-structured in-person interviews with 13 parents of 10 index children to explore their experience in the medical genetics appo...
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| Autors principals: | , , , |
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| Format: | Artigo |
| Idioma: | Inglês |
| Publicat: |
2014
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| Matèries: | |
| Accés en línia: | https://ncbi.nlm.nih.gov/pmc/articles/PMC4039554/ https://ncbi.nlm.nih.gov/pubmed/24706543 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.36525 |
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