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Participant-centric initiatives: Tools to facilitate engagement in research

Clinical genomic research faces increasing challenges in establishing participant privacy and consent processes that facilitate meaningful choice and communication capacity for longitudinal and secondary research uses. There are an evolving range of participant-centric initiatives that combine web-b...

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Detalhes bibliográficos
Main Authors: Anderson, Nicholas, Bragg, Caleb, Hartzler, Andrea, Edwards, Kelly
Formato: Artigo
Idioma:Inglês
Publicado em: Elsevier 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3998724/
https://ncbi.nlm.nih.gov/pubmed/24772384
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.atg.2012.07.001
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