HD-PRO-TRIAD™ Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease

BACKGROUND: Few valid, disease-specific measures of health-related quality of life (HRQOL) capture the spectrum of symptoms associated with Huntington's disease (HD). The HD-PRO-TRIAD™ is a new, HD-specific, patient-reported outcome (PRO) instrument of the HD symptom triad (cognitive decline, e...

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Detalhes bibliográficos
Main Authors: Carlozzi, Noelle E., Victorson, David, Sung, Victor, Beaumont, Jennifer L., Cheng, Wendy, Gorin, Brian, Duh, Mei Sheng, Samuelson, David, Tulsky, David, Gutierrez, Sandra, Nowinski, Cindy J., Mueller, Allison, Shen, Vivienne, Frank, Samuel
Formato: Artigo
Idioma:Inglês
Publicado em: Columbia University Libraries/Information Services 2014
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3990832/
https://ncbi.nlm.nih.gov/pubmed/24761312
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.7916/D8PN93NZ
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