HD-PRO-TRIAD™ Validation: A Patient-reported Instrument for the Symptom Triad of Huntington's Disease

BACKGROUND: Few valid, disease-specific measures of health-related quality of life (HRQOL) capture the spectrum of symptoms associated with Huntington's disease (HD). The HD-PRO-TRIAD™ is a new, HD-specific, patient-reported outcome (PRO) instrument of the HD symptom triad (cognitive decline, e...

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Bibliografische gegevens
Hoofdauteurs: Carlozzi, Noelle E., Victorson, David, Sung, Victor, Beaumont, Jennifer L., Cheng, Wendy, Gorin, Brian, Duh, Mei Sheng, Samuelson, David, Tulsky, David, Gutierrez, Sandra, Nowinski, Cindy J., Mueller, Allison, Shen, Vivienne, Frank, Samuel
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: Columbia University Libraries/Information Services 2014
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Article
Online toegang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3990832/
https://ncbi.nlm.nih.gov/pubmed/24761312
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.7916/D8PN93NZ
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