Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting

PURPOSE: The purpose of this study was to explore the attitudes of genomics researchers in a pediatric setting in the context of regulatory guidance recommending the disclosure of clinically significant research findings. METHODS: A validated 32-item questionnaire was sent to 107 researchers with tw...

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Bibliographic Details
Main Authors: Fernandez, Conrad V., Strahlendorf, Caron, Avard, Denise, Knoppers, Bartha M., O'Connell, Colleen, Bouffet, Eric, Malkin, David, Jabado, Nada, Boycott, Kym, Sorensen, Poul H.
Format: Artigo
Language:Inglês
Published: Nature Publishing Group 2013
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Original Research Article
Online Access:https://ncbi.nlm.nih.gov/pmc/articles/PMC3910293/
https://ncbi.nlm.nih.gov/pubmed/23370450
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2012.183
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