Patient-reported outcomes in neurofibromatosis and schwannomatosis clinical trials

OBJECTIVES: Neurofibromatosis (NF) is a genetic disease with multiple clinical manifestations that can significantly impact quality of life (QOL). Clinical trials should include patient-reported outcomes (PROs) as endpoints to assess treatment effects on various aspects of QOL, but there is no conse...

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Autors principals: Wolters, Pamela L., Martin, Staci, Merker, Vanessa L., Gardner, Kathy L., Hingtgen, Cynthia M., Tonsgard, James H., Schorry, Elizabeth K., Baldwin, Andrea
Format: Artigo
Idioma:Inglês
Publicat: Lippincott Williams & Wilkins 2013
Matèries:
Response evaluation in neurofibromatosis and schwannomatosis (REiNS)
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3908341/
https://ncbi.nlm.nih.gov/pubmed/24249806
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1212/01.wnl.0000435747.02780.bf
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