A framework to start the debate on neonatal screening policies in the EU: an Expert Opinion Document

The European Union (EU) Council Recommendation on rare diseases urged the member states to implement national and EU collaborative actions to improve the health care of rare disease patients. Following this recommendation, the European Commission launched a tender on newborn screening (NBS) to repor...

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Autors principals: Cornel, Martina C, Rigter, Tessel, Weinreich, Stephanie S, Burgard, Peter, Hoffmann, Georg F, Lindner, Martin, Gerard Loeber, J, Rupp, Kathrin, Taruscio, Domenica, Vittozzi, Luciano
Format: Artigo
Idioma:Inglês
Publicat: Nature Publishing Group 2014
Matèries:
Policy
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3865414/
https://ncbi.nlm.nih.gov/pubmed/23652378
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2013.90
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