Ethical and practical challenges to studying patients who opt out of large-scale biorepository research

Large-scale biorepositories that couple biologic specimens with electronic health records containing documentation of phenotypic expression can accelerate scientific research and discovery. However, differences between those subjects who participate in biorepository-based research and the population...

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Detalhes bibliográficos
Main Authors: Rosenbloom, S Trent, Madison, Jennifer L, Brothers, Kyle B, Bowton, Erica A, Clayton, Ellen Wright, Malin, Bradley A, Roden, Dan M, Pulley, Jill
Formato: Artigo
Idioma:Inglês
Publicado em: BMJ Publishing Group 2013
Assuntos:
Perspective
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3861935/
https://ncbi.nlm.nih.gov/pubmed/23886923
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/amiajnl-2013-001937
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