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The impact of severe osteogenesis imperfecta on the lives of young patients and their parents – a qualitative analysis
BACKGROUND: Osteogenesis imperfecta (OI) is a rare genetic disorder that causes increased bone fragility. Living with, caring for, and parenting a child with OI are all highly demanding and challenging. This study is a temporal analysis of the impact of severe OI on the lives of young patients and t...
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| Autores principales: | , , , , , , |
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| Formato: | Artigo |
| Lenguaje: | Inglês |
| Publicado: |
BioMed Central
2013
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| Materias: | |
| Acceso en línea: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3852302/ https://ncbi.nlm.nih.gov/pubmed/24074180 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1471-2431-13-153 |
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