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Initial development and validation of a mitochondrial disease quality of life scale

Mitochondrial diseases are a clinically diverse group of genetic disorders that often present to neurologists. Health related quality of life (HRQOL) is increasingly recognised as a fundamental patient based outcome measure in both clinical intervention and research. Generic outcome measures have be...

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Detalhes bibliográficos
Main Authors: Elson, J.L., Cadogan, M., Apabhai, S., Whittaker, R.G., Phillips, A., Trennell, M.I., Horvath, R., Taylor, R.W., McFarland, R., McColl, E., Turnbull, D.M., Gorman, G.S.
Formato: Artigo
Idioma:Inglês
Publicado em: Pergamon Press 2013
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3841574/
https://ncbi.nlm.nih.gov/pubmed/23433484
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.nmd.2012.12.012
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