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Critical Illness Research Involving collection of Genomic Data: The Conundrum Posed by Low Levels of Genomic Literacy among Surrogate Decision Makers for Critically Ill Patients

Critical illness clinical trials that entail genomic data collection pose unique challenges. In this qualitative study, we found that surrogate decision makers (SDMs) for critically ill individuals, such as those who would be approached for study participation, appeared to have a limited grasp of ge...

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書誌詳細
主要な著者: Iverson, Ellen, Celious, Aaron, Shehane, Erica, Oerke, Mandy, Warren, Victoria, Eastman, Alexander, Kennedy, Carie R., Freeman, Bradley D.
フォーマット: Artigo
言語:Inglês
出版事項: 2013
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC3811909/
https://ncbi.nlm.nih.gov/pubmed/23933776
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2013.8.3.53
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