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Critical Illness Research Involving collection of Genomic Data: The Conundrum Posed by Low Levels of Genomic Literacy among Surrogate Decision Makers for Critically Ill Patients

Critical illness clinical trials that entail genomic data collection pose unique challenges. In this qualitative study, we found that surrogate decision makers (SDMs) for critically ill individuals, such as those who would be approached for study participation, appeared to have a limited grasp of ge...

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Détails bibliographiques
Auteurs principaux: Iverson, Ellen, Celious, Aaron, Shehane, Erica, Oerke, Mandy, Warren, Victoria, Eastman, Alexander, Kennedy, Carie R., Freeman, Bradley D.
Format: Artigo
Langue:Inglês
Publié: 2013
Sujets:
Accès en ligne:https://ncbi.nlm.nih.gov/pmc/articles/PMC3811909/
https://ncbi.nlm.nih.gov/pubmed/23933776
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2013.8.3.53
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