The personal experience of parenting a child with Juvenile Huntington's Disease: perceptions across Europe

The study reported here presents a detailed description of what it is like to parent a child with juvenile Huntington's disease in families across four European countries. Its primary aim was to develop and extend findings from a previous UK study. The study recruited parents from four European...

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Main Authors: Eatough, Virginia, Santini, Helen, Eiser, Christine, Goller, Marie-Louise, Krysa, Wioletta, de Nicola, ‘Annunziata', Paduanello, Matteo, Petrollini, Martina, Rakowicz, Maria, Squitieri, Ferdinando, Tibben, Aad, Lee Weille, Katie, Landwehrmeyer, Bernhard, Quarrell, Oliver, Smith, Jonathan A
Format: Artigo
Jezik:Inglês
Izdano: Nature Publishing Group 2013
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Article
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC3778352/
https://ncbi.nlm.nih.gov/pubmed/23443023
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2013.15
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