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The disclosure of incidental genomic findings: an “ethically important moment” in pediatric research and practice

Although there are numerous position papers on the issues and challenges surrounding disclosure of incidental genomic findings involving children, there is very little research. To fill this gap, the purpose of this study was to explore the perspectives of multiple professional (N = 103) and public...

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Autores principales: Driessnack, Martha, Daack-Hirsch, Sandra, Downing, Nancy, Hanish, Alyson, Shah, Lisa L., Alasagheirin, Mohammed, Simon, Christian M., Williams, Janet K.
Formato: Artigo
Lenguaje:Inglês
Publicado: Springer Berlin Heidelberg 2013
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC3773311/
https://ncbi.nlm.nih.gov/pubmed/23572417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-013-0145-1
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