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The disclosure of incidental genomic findings: an “ethically important moment” in pediatric research and practice

Although there are numerous position papers on the issues and challenges surrounding disclosure of incidental genomic findings involving children, there is very little research. To fill this gap, the purpose of this study was to explore the perspectives of multiple professional (N = 103) and public...

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Detalhes bibliográficos
Main Authors: Driessnack, Martha, Daack-Hirsch, Sandra, Downing, Nancy, Hanish, Alyson, Shah, Lisa L., Alasagheirin, Mohammed, Simon, Christian M., Williams, Janet K.
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2013
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3773311/
https://ncbi.nlm.nih.gov/pubmed/23572417
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-013-0145-1
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