The internet user profile of Italian families of patients with rare diseases: a web survey

BACKGROUND: The use of the Internet for searching and sharing health information and for health care interactions may have a great potential for families of children affected with rare diseases. We conducted an online survey among Italian families of patients with rare diseases with the objective to...

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Hlavní autoři: Tozzi, Alberto E, Mingarelli, Rita, Agricola, Eleonora, Gonfiantini, Michaela, Pandolfi, Elisabetta, Carloni, Emanuela, Gesualdo, Francesco, Dallapiccola, Bruno
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2013
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Research
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3662591/
https://ncbi.nlm.nih.gov/pubmed/23680013
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-76
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