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Standardization of Questions in Rare Disease Registries: The PRISM Library Project
BACKGROUND: Patient registries are often a helpful first step in estimating the impact and understanding the etiology of rare diseases - both requisites for the development of new diagnostics and therapeutics. The value and utility of patient registries rely on the use of both well-constructed struc...
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| Main Authors: | , , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
JMIR Publications Inc.
2012
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3626121/ https://ncbi.nlm.nih.gov/pubmed/23611924 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/ijmr.2107 |
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