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Family burden in inherited ichthyosis: creation of a specific questionnaire

BACKGROUND: The concept of individual burden, associated with disease, has been introduced recently to determine the “disability” caused by the pathology in the broadest sense of the word (psychological, social, economic, physical). Inherited ichthyosis belong to a large heterogeneous group of Mende...

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Detalhes bibliográficos
Main Authors: Dufresne, Hélène, Hadj-Rabia, Smail, Méni, Cécile, Sibaud, Vincent, Bodemer, Christine, Taïeb, Charles
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2013
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3599730/
https://ncbi.nlm.nih.gov/pubmed/23414570
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-8-28
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