Common Data Elements for Clinical Research in Friedreich Ataxia

BACKGROUND: To reduce study start-up time, increase data sharing, and assist investigators conducting clinical studies, the National Institute of Neurological Disorders and Stroke embarked on an initiative to create common data elements for neuroscience clinical research. The Common Data Element Tea...

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Autores principales: Lynch, David R., Pandolfo, Massimo, Schulz, Jorg B., Perlman, Susan, Delatycki, Martin B., Payne, R. Mark, Shaddy, Robert, Fischbeck, Kenneth H., Farmer, Jennifer, Kantor, Paul, Raman, Subha V., Hunegs, Lisa, Odenkirchen, Joanne, Miller, Kristy, Kaufmann, Petra
Formato: Artigo
Lenguaje:Inglês
Publicado: 2012
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Article
Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC3581713/
https://ncbi.nlm.nih.gov/pubmed/23239403
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/mds.25201
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