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Problems of Adults with a Mitochondrial Disease – The Patients’ Perspective: Focus on Loss

Objective: This study aimed to identify problems as experienced by adults with a mitochondrial disease. We chose to describe these problems from the patients’ perspective as we thought this would give optimal input for care improvement. Design: A qualitative design using the grounded theory approach...

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Detalhes bibliográficos
Main Authors: Noorda, Greet, van Achterberg, Theo, van der Hooft, Truus, Smeitink, Jan, Schoonhoven, Lisette, van Engelen, Baziel
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3565683/
https://ncbi.nlm.nih.gov/pubmed/23430944
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/8904_2011_121
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