An i2b2-based, generalizable, open source, self-scaling chronic disease registry

OBJECTIVE: Registries are a well-established mechanism for obtaining high quality, disease-specific data, but are often highly project-specific in their design, implementation, and policies for data use. In contrast to the conventional model of centralized data contribution, warehousing, and control...

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Detalhes bibliográficos
Main Authors: Natter, Marc D, Quan, Justin, Ortiz, David M, Bousvaros, Athos, Ilowite, Norman T, Inman, Christi J, Marsolo, Keith, McMurry, Andrew J, Sandborg, Christy I, Schanberg, Laura E, Wallace, Carol A, Warren, Robert W, Weber, Griffin M, Mandl, Kenneth D
Formato: Artigo
Idioma:Inglês
Publicado em: BMJ Group 2013
Assuntos:
Focus on Data Sharing
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3555330/
https://ncbi.nlm.nih.gov/pubmed/22733975
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/amiajnl-2012-001042
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