Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador

OBJECTIVE: To provide a legal and ethical analysis of some of the implementation challenges faced by the Population Therapeutics Research Group (PTRG) at Memorial University (Canada), in using genealogical information offered by individuals for its genetics research database. MATERIALS AND METHODS:...

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Библиографические подробности
Главные авторы: Kosseim, Patricia, Pullman, Daryl, Perrot-Daley, Astrid, Hodgkinson, Kathy, Street, Catherine, Rahman, Proton
Формат: Artigo
Язык:Inglês
Опубликовано: BMJ Group 2013
Предметы:
Focus on Patient Privacy
Online-ссылка:https://ncbi.nlm.nih.gov/pmc/articles/PMC3555321/
https://ncbi.nlm.nih.gov/pubmed/22859644
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/amiajnl-2012-001009
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