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Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases

BACKGROUND: Calls have been made for governments to adopt a cohesive approach to rare diseases through the development of national plans. At present, Australia does not have a national plan for rare diseases. To progress such a plan an inaugural Australian Rare Diseases Symposium was held in Western...

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Detalhes bibliográficos
Main Authors: Molster, Caron, Youngs, Leanne, Hammond, Emma, Dawkins, Hugh
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2012
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3488492/
https://ncbi.nlm.nih.gov/pubmed/22883422
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-7-50
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