A long diagnostic delay in patients with Hereditary Haemorrhagic Telangiectasia: a questionnaire-based retrospective study

BACKGROUND: The difficulty in establishing a timely correct diagnosis is a relevant matter of concern for several rare diseases. Many rare-disease-affected patients suffer from considerable diagnostic delay, mainly due to their poor knowledge among healthcare professionals, insufficient disease awar...

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Main Authors: Pierucci, Paola, Lenato, Gennaro M, Suppressa, Patrizia, Lastella, Patrizia, Triggiani, Vincenzo, Valerio, Raffaella, Comelli, Mario, Salvante, Daniela, Stella, Alessandro, Resta, Nicoletta, Logroscino, Giancarlo, Resta, Francesco, Sabbà, Carlo
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2012
Teme:
Research
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC3458963/
https://ncbi.nlm.nih.gov/pubmed/22676497
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1750-1172-7-33
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