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The Meaning of Genetic Research Results: Reflections from Individuals With and Without a Known Genetic Disorder

In the debate about whether to return individual genetic results to research participants, consideration of the nature of results has taken precedence over contextual factors associated with different study designs and populations. We conducted in-depth interviews with 24 individuals who participate...

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Detalhes bibliográficos
Main Authors: Cadigan, R. Jean, Michie, Marsha, Henderson, Gail, Davis, Arlene M., Beskow, Laura M.
Formato: Artigo
Idioma:Inglês
Publicado em: 2011
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3386306/
https://ncbi.nlm.nih.gov/pubmed/22228058
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2011.6.4.30
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