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Parental Attitudes toward Ethical and Social Issues Surrounding the Expansion of Newborn Screening Using New Technologies

AIMS: This study assessed parent knowledge of newborn screening (NBS) and parent attitudes toward NBS for untreatable conditions, NBS for late-onset disorders and informed consent in NBS. METHODS: Seventeen qualitative focus groups were held in Alaska, California, Hawaii, and Washington with mothers...

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Detalhes bibliográficos
Main Authors: Hasegawa, L.E., Fergus, K.A., Ojeda, N., Au, S.M.
Formato: Artigo
Idioma:Inglês
Publicado em: S. Karger AG 2011
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3214890/
https://ncbi.nlm.nih.gov/pubmed/20689248
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000314644
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