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Parental Attitudes toward Ethical and Social Issues Surrounding the Expansion of Newborn Screening Using New Technologies
AIMS: This study assessed parent knowledge of newborn screening (NBS) and parent attitudes toward NBS for untreatable conditions, NBS for late-onset disorders and informed consent in NBS. METHODS: Seventeen qualitative focus groups were held in Alaska, California, Hawaii, and Washington with mothers...
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Main Authors: | , , , |
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Formato: | Artigo |
Idioma: | Inglês |
Publicado em: |
S. Karger AG
2011
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Assuntos: | |
Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3214890/ https://ncbi.nlm.nih.gov/pubmed/20689248 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000314644 |
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