Assessment of patient and caregiver needs in fragile X-associated tremor/ataxia syndrome (FXTAS) by utilizing Q-sort methodology

OBJECTIVES: Psychosocial stressors faced by patients with fragile X-associated tremor/ataxia syndrome (FXTAS) and their caregivers have not been systematically explored. FXTAS is a neurodegenerative disease occurring in approximately 45% of elderly male carriers and 8–16% of female carriers of the F...

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Hlavní autoři: Gane, Louise W., Iosif, Ana-Maria, Flynn-Wilson, Linda, Venturino, Marielle, Hagerman, Randi J., Seritan, Andreea L.
Médium: Artigo
Jazyk:Inglês
Vydáno: 2010
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Article
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3189491/
https://ncbi.nlm.nih.gov/pubmed/21069606
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/13607863.2010.501066
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