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Burden of illness of Pompe disease in patients only receiving supportive care
BACKGROUND: Pompe disease is an orphan disease for which enzyme replacement therapy (ERT) recently became available. This study aims to estimate all relevant aspects of burden of illness—societal costs, use of home care and informal care, productivity losses, and losses in health-related quality of...
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| Hauptverfasser: | , , , , , |
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| Format: | Artigo |
| Sprache: | Inglês |
| Veröffentlicht: |
Springer Netherlands
2011
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| Schlagworte: | |
| Online Zugang: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3173621/ https://ncbi.nlm.nih.gov/pubmed/21499718 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10545-011-9320-x |
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