Parents' perception of self-advocacy of children with myositis: an anonymous online survey

BACKGROUND: Children with complex medical issues experience barriers to the transition of care from pediatric to adult providers. We sought to identify these barriers by elucidating the experiences of patients with idiopathic inflammatory muscle disorders. METHODS: We collected anonymous survey data...

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Bibliografiske detaljer
Main Authors: Katz, James D, Mamyrova, Gulnara, Agarwal, Shilpi, Jones, Olcay Y, Bollar, Harriet, Huber, Adam M, Rider, Lisa G, White, Patience H
Format: Artigo
Sprog:Inglês
Udgivet: BioMed Central 2011
Fag:
Research
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3118375/
https://ncbi.nlm.nih.gov/pubmed/21649897
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1546-0096-9-10
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