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Vaso-occlusive Painful Events in Sickle Cell Disease: Impact on Child Well-Being

BACKGROUND: This study describes how painful events affect the health related quality of life (HRQL) of children with sickle cell disease (SCD) and determines the responsiveness of a generic HRQL measure in SCD. Our hypotheses were twofold: 1) HRQL is significantly impaired at presentation to the em...

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Autors principals: Brandow, Amanda M., Brousseau, David C., Pajewski, Nicholas M., Panepinto, Julie A.
Format: Artigo
Idioma:Inglês
Publicat: 2010
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC3114448/
https://ncbi.nlm.nih.gov/pubmed/19653296
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/pbc.22222
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