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Study Newsletters, Community and Ethics Advisory Boards, and Focus Group Discussions Provide Ongoing Feedback for a Large Biobank

The Personalized Medicine Research Project (PMRP) is a population-based biobank with more than 20,000 adult participants in central Wisconsin. A Community Advisory Group (CAG) and Ethics and Security Advisory Board (ESAB) provide ongoing feedback. In addition, the study newsletter is used as a two-w...

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Detalhes bibliográficos
Main Authors: McCarty, Catherine A., Garber, Ann, Reeser, Jonathan C., Fost, Norman C.
Formato: Artigo
Idioma:Inglês
Publicado em: 2011
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3092645/
https://ncbi.nlm.nih.gov/pubmed/21572889
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.33896
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