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Experiences of Families with a Child, Adolescent, or Young Adult with Neurofibromatosis Type 1 and Plexiform Neurofibroma Evaluated for Clinical Trials Participation at the National Cancer Institute

BACKGROUND: With increasing knowledge of the molecular pathways contributing to the progression of neurofibromatosis type 1 (NF1)-related plexiform neurofibroma (PN), the number of clinical trials for PNs has increased. However, little is known about experiences of families with children with NF1 pa...

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Detalhes bibliográficos
Main Authors: Martin, Staci, Gillespie, Andrea, Wolters, Pamela L., Widemann, Brigitte C.
Formato: Artigo
Idioma:Inglês
Publicado em: 2010
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3005819/
https://ncbi.nlm.nih.gov/pubmed/20951236
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.cct.2010.10.004
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