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Personal genome research: what should the participant be told?

Should the results of whole genome sequencing research be disclosed to participants, in particular when the results have uncertain or indeterminate phenotypic consequences? This controversial question is considered in light of one author's (JL) experience as a geneticist who recently had his ow...

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Detalhes bibliográficos
Main Authors: McGuire, Amy L., Lupski, James R.
Formato: Artigo
Idioma:Inglês
Publicado em: 2010
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2868334/
https://ncbi.nlm.nih.gov/pubmed/20381895
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.tig.2009.12.007
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