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Public Opinion about the Importance of Privacy in Biobank Research

Concerns about privacy may deter people from participating in genetic research. Recruitment and retention of biobank participants requires understanding the nature and magnitude of these concerns. Potential participants in a proposed biobank were asked about their willingness to participate, their p...

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Autori principali: Kaufman, David J., Murphy-Bollinger, Juli, Scott, Joan, Hudson, Kathy L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: Elsevier 2009
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC2775831/
https://ncbi.nlm.nih.gov/pubmed/19878915
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajhg.2009.10.002
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