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Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research
OBJECTIVES: To study the consent process experienced by participants who are enrolled in a molecular genetic research study that aims to find new genetic mutations responsible for an apparently inherited disorder. DESIGN: Semi-structured interviews and analysis/description of main themes. PARTICIPAN...
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| Hlavní autoři: | , , , , , |
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| Médium: | Artigo |
| Jazyk: | Inglês |
| Vydáno: |
BMJ Publishing Group
2008
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| Témata: | |
| On-line přístup: | https://ncbi.nlm.nih.gov/pmc/articles/PMC2771893/ https://ncbi.nlm.nih.gov/pubmed/18757643 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1136/jme.2006.018564 |
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