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Health-Related Quality of Life Measures in Genetic Disorders: an Outcome Variable for Consideration in Clinical Trials

The field of medical genetics is rapidly advancing, and therapeutic options to treat genetic syndromes are becoming increasingly available. An understanding of the pathophysiology of various genetic disorders has provided researchers the opportunity to propose and test pharmacologic agents in precli...

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書目詳細資料
Main Authors: Stevenson, David A., Carey, John C.
格式: Artigo
語言:Inglês
出版: 2009
主題:
在線閱讀:https://ncbi.nlm.nih.gov/pmc/articles/PMC2745208/
https://ncbi.nlm.nih.gov/pubmed/19621444
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.c.30217
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