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An Automated Communication System in a Contact Registry for Persons with Rare Diseases: Scalable Tools for Identifying and Recruiting Clinical Research Participants

OBJECTIVES: Strategies for study recruitment are useful in clinical research network settings. We describe a registry of individuals who have self-identified with one of a multiplicity of rare diseases, and who express a willingness to be contacted regarding possible enrollment in clinical research...

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Autori principali: Richesson, R. L., Lee, H.S, Cuthbertson, D., Lloyd, J., Young, K., Krischer, J.P.
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2008
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC2640948/
https://ncbi.nlm.nih.gov/pubmed/18804556
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.cct.2008.09.002
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