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A national register for surveillance of inherited disorders: beta thalassaemia in the United Kingdom.

OBJECTIVE: To demonstrate the value of a national register for surveillance of services for an inherited disorder. METHODS: Data from the United Kingdom Thalassaemia Register and the United Kingdom Register of Prenatal Diagnosis for Haemoglobin Disorders were combined in a database; these registers...

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Bibliografiske detaljer
Main Authors: Modell, B., Khan, M., Darlison, M., King, A., Layton, M., Old, J., Petrou, M., Varnavides, L.
Format: Artigo
Sprog:Inglês
Udgivet: World Health Organization 2001
Fag:
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC2566700/
https://ncbi.nlm.nih.gov/pubmed/11731807
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