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Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges

BACKGROUND: Universal newborn screening for early detection of children affected by sickle cell disorders and cystic fibrosis is currently being implemented across England. Parents of infants identified as carriers of these disorders must also be informed of their baby's result. However there i...

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Autors principals: Parker, Hilda, Qureshi, Nadeem, Ulph, Fiona, Kai, Joe
Format: Artigo
Idioma:Inglês
Publicat: BioMed Central 2007
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC2235853/
https://ncbi.nlm.nih.gov/pubmed/18078504
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6963-7-203
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