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Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges

BACKGROUND: Universal newborn screening for early detection of children affected by sickle cell disorders and cystic fibrosis is currently being implemented across England. Parents of infants identified as carriers of these disorders must also be informed of their baby's result. However there i...

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Detalhes bibliográficos
Main Authors: Parker, Hilda, Qureshi, Nadeem, Ulph, Fiona, Kai, Joe
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2007
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC2235853/
https://ncbi.nlm.nih.gov/pubmed/18078504
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/1472-6963-7-203
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