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Quality of life in patients with cystic fibrosis and their parents: what is important besides disease severity?

BACKGROUND—Cystic fibrosis is the most common inherited disease with a fatal outcome in industrialised nations. With the improvement in life expectancy, supporting patients and their families in adapting to life with this chronic progressive disease has become increasingly important. The aim of the...

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Autors principals: Staab, D, Wenninger, K, Gebert, N, Rupprath, K, Bisson, S, Trettin, M, Paul, K, Keller, K, Wahn, U
Format: Artigo
Idioma:Inglês
Publicat: BMJ Group 1998
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Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC1745310/
https://ncbi.nlm.nih.gov/pubmed/10319053
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