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A Survey of the SWISS Researchers on the Impact of Sibling Privacy Protections on Pedigree Recruitment

To understand the perceptions and attitudes about privacy safeguards in research and investigate the impact of letter-based proband-initiated contact on recruitment, we surveyed researchers in the Siblings With Ischemic Stroke Study (SWISS). All 49 actively recruiting sites provided at least 1 respo...

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Detalles Bibliográficos
Autores principales: Worrall, Bradford B., Chen, Donna T., Brown, Robert D., Brott, Thomas G., Meschia, James F.
Formato: Artigo
Lenguaje:Inglês
Publicado: 2005
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Acceso en línea:https://ncbi.nlm.nih.gov/pmc/articles/PMC1713215/
https://ncbi.nlm.nih.gov/pubmed/15855803
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000085311
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