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A Model for a Regional System of Care to Promote the Health and Well-Being of People with Rare Chronic Genetic Disorders
People with rare, inherited chronic health conditions, such as hemophilia, face added physical, social, emotional, and fiscal challenges beyond those that are common to more prevalent chronic conditions. In 1975, a partnership among clinicians, consumers, and government agencies created a nationwide...
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| Main Authors: | , , , , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
© American Journal of Public Health 2005
2005
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC1449458/ https://ncbi.nlm.nih.gov/pubmed/16195525 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2105/AJPH.2004.051318 |
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