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Psychosocial adaptation in adolescents and young adults with Marfan syndrome: an exploratory study.

We conducted a pilot study to evaluate the psychological effects and consequences of Marfan syndrome in 17 patients between 16 and 35 years of age. Through a semi-structured interview, we investigated how the patients coped daily with Marfan syndrome and evaluated the impact of the disease on specif...

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Detalhes bibliográficos
Main Authors: Van Tongerloo, A, De Paepe, A
Formato: Artigo
Idioma:Inglês
Publicado em: 1998
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC1051315/
https://ncbi.nlm.nih.gov/pubmed/9610804
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