Designing rare disease care pathways in the Republic of Ireland: a co-operative model

Abstract Background Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high...

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Autores principales: A. J. Ward, D. Murphy, R. Marron, V. McGrath, M. Bolz-Johnson, W. Cullen, A. Daly, O. Hardiman, A. Lawlor, S. A. Lynch, M. MacLachlan, J. McBrien, S. Ni Bhriain, J. J. O’Byrne, S. M. O’Connell, J. Turner, E. P. Treacy
Formato: Artigo
Lenguaje:Inglês
Publicado: BMC 2022-04-01
Colección:Orphanet Journal of Rare Diseases
Materias:
Rare diseases
Care pathways
Ireland
Acceso en línea:https://doi.org/10.1186/s13023-022-02309-6
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