Hope, disappointment and perseverance: Reflections of people with Myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Multiple Sclerosis participating in biomedical research. A qualitative focus group study

Abstract Background The Clinical Understanding and Research Excellence in ME/CFS group (CureME) at the London School of Hygiene & Tropical Medicine has supported and undertaken studies in immunology, genetics, virology, clinical medicine, epidemiology and disability. It established the UK ME/CFS...

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Main Authors: Eliana M. Lacerda, Clare McDermott, Caroline C. Kingdon, Jack Butterworth, Jacqueline M. Cliff, Luis Nacul
Formato: Artigo
Idioma:Inglês
Publicado em: Wiley 2019-06-01
Colecção:Health Expectations
Assuntos:
chronic fatigue syndrome
focus groups
multiple sclerosis
myalgic encephalomyelitis
patient and public involvement
qualitative research
Acesso em linha:https://doi.org/10.1111/hex.12857
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