Validation of novel patient-centred juvenile idiopathic arthritis-specific patient-reported outcome and experience measures (PROMs/PREMs)

Abstract Background Measuring the outcomes that matter to children and young people (CYP) with juvenile idiopathic arthritis (JIA), is a necessary precursor to patient-centred improvements in quality of clinical care. We present a two-centre validation of novel JIA patient-reported outcome and exper...

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Bibliografische gegevens
Hoofdauteurs: Laura E. Lunt, Stephanie Shoop-Worrall, Nicola Smith, Gavin Cleary, Janet McDonagh, Andrew D. Smith, Wendy Thomson, Flora McErlane
Formaat: Artigo
Taal:Inglês
Gepubliceerd in: BMC 2020-11-01
Reeks:Pediatric Rheumatology Online Journal
Onderwerpen:
Juvenile idiopathic arthritis
Quality of care
Patient-reported outcomes
Validation
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Online toegang:http://link.springer.com/article/10.1186/s12969-020-00481-2
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