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A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

Abstract Background As part of a late onset GM2 gangliosidosis natural history study, digital health technology was utilized to monitor a group of patients remotely between hospital visits. This approach was explored as a means of capturing continuous data and moving away from focusing only on episo...

पूर्ण विवरण

में बचाया:
ग्रंथसूची विवरण
मुख्य लेखकों: Elin Haf Davies, Jean Johnston, Camilo Toro, Cynthia J. Tifft
स्वरूप: Artigo
भाषा:Inglês
प्रकाशित: BMC 2020-08-01
श्रृंखला:Orphanet Journal of Rare Diseases
विषय:
ऑनलाइन पहुंच:http://link.springer.com/article/10.1186/s13023-020-01473-x
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