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Evaluating quality of life tools in North American patients with erythropoietic protoporphyria and X‐linked protoporphyria
Abstract Background Erythropoietic protoporphyria (EPP) and X‐linked Protoporphyria (XLP) are rare photodermatoses presenting with severe phototoxicity. Although anecdotally, providers who treat EPP patients acknowledge their life‐altering effects, tools that fully capture their impact on quality of...
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| 主要な著者: | , , , , , , , , , , |
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| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
Wiley
2019-11-01
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| シリーズ: | JIMD Reports |
| 主題: | |
| オンライン･アクセス: | https://doi.org/10.1002/jmd2.12052 |
| タグ: |
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