Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation [version 1; peer review: 2 approved]

Genomic science is increasingly central to the provision of health care. Producing and applying robust genomics knowledge is a complex endeavour in which no single individual, profession, discipline or community holds all the answers.  Engagement and involvement of diverse stakeholders can support a...

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Hlavní autoři: Joel T. Minion, Richard Milne, Stephanie Mulrine, Mogomotsi Matshaba, Rosalyn Ryan, Christine Patch, Fiona Maleady-Crowe, Jantina de Vries, Judit Kumuthini, Anna Middleton, William Viney, Madeleine J. Murtagh, Mavis Machirori, Mwenza T. Blell, Clara L. Gaff, Edward S. Dove, Megan Doerr, Jillian Hastings Ward, Audrey Duncanson, Calvin W. L. Ho, Rachele Hendricks-Sturrup, Yann Joly, Amber Johns, Keiko Katsui, Kazuto Kato
Médium: Artigo
Jazyk:Inglês
Vydáno: Wellcome 2021-11-01
Edice:Wellcome Open Research
Témata:
Engagement and involvement; Genomics; Trust
Equality
Diversity and Inclusion; Fairness; Reciprocity; Collaboration; Global; Quality.
eng
On-line přístup:https://wellcomeopenresearch.org/articles/6-311/v1
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