Giving Credence to the Experience of X-Linked Hypophosphatemia in Adulthood: An Interprofessional Mixed-Methods Study

Purpose: X-linked hypophosphatemia (XLH) is a rare X-linked dominant metabolic bone disease, often diagnosed in childhood but causing increasing physical debilitation and pain in adulthood. Physical comorbidities of XLH in adulthood include pervasive and early-onset degenerative arthritis, mineraliz...

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Bibliographic Details
Main Authors: Melissa Hughes, Carolyn Macica, Catherine Meriano, Maya Doyle
Format: Artigo
Language:Inglês
Published: Aurora Health Care 2020-04-01
Series:Journal of Patient-Centered Research and Reviews
Subjects:
x-linked hypophosphatemia
endocrine
musculoskeletal
occupational therapy
physical therapy
social work
pain
providers
Online Access:https://digitalrepository.aurorahealthcare.org/cgi/viewcontent.cgi?article=1727&context=jpcrr
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