Development of the Clinical Gestalt Assessment: a visual clinical global impression scale for Proteus syndrome

Abstract Background Clinical outcome assessments are important tools for measuring the natural history of disease and efficacy of an intervention. The heterogenous phenotype and difficult to quantity features of Proteus syndrome present challenges to measuring clinical outcomes. To address these, we...

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Autori principali: Christopher A. Ours, Mia B. Hodges, Neal Oden, Julie C. Sapp, Leslie G. Biesecker
Natura: Artigo
Lingua:Inglês
Pubblicazione: BMC 2022-04-01
Serie:Orphanet Journal of Rare Diseases
Soggetti:
Proteus syndrome
Clinician-reported outcome measures
Outcome assessments
Accesso online:https://doi.org/10.1186/s13023-022-02325-6
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